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A Post About Medication



If you live in Utah you know there is a HUGE battle going on right now around Prop 2. If you don't live in Utah, and have no idea what I am talking about, Prop 2 is to legalize medical marijuana.


Why does this affect me? Well you see, I am not only a member of the church, I am also the mother of a child with epilepsy. A beautiful, amazing 13-year-old girl who has struggled for years trying to find a medication to control her seizures. Her medical team agrees she is the perfect candidate to try cannabis oil for her seizures. Utah has a VERY small number of licenses to be allowed to possess this medication, and we have fought for over a year to be granted one. One of the things they asked was for her to try a FOURTH medication. So they gave her Lamictal....


Here is the text of the FDA black box warning for Lamictal®:

WARNING: SERIOUS SKIN RASHES

Lamictal® can cause serious rashes requiring hospitalization and discontinuation of treatment. The incidence of these rashes, which have included Stevens­ Johnson syndrome, is approximately 0.8% (8 per 1,000) in pediatric patients (2 to 16 years of age) receiving LAMICTAL as adjunctive therapy for epilepsy and 0.3% (3 per 1,000) in adults on adjunctive therapy for epilepsy.


So guess what happened next....

This was day one...




Over the next few days’ blisters formed in her mouth and she couldn't eat. We had to force her to drink Boba tea and smoothies so she wouldn't get dehydrated.







It took MONTHS to recover fully from this physically, as well as including hospital stays for dehydration. It’s been just over a year, and the mental trauma is still there sometimes...

There was zero need for this to happen. We had tried 3 medications, a ketogenic diet, every supplement, essential oil, blessings, prayers, EVERYTHING you could think of. HER DOCTORS yet again said cannabis, which falls under the medical marijuana umbrella. But... the state said, "well...wait... let’s do this now..."

A $40,000 4 day hospital stay... FORTY THOUSAND DOLLARS....


To track seizure activity to see if they could pinpoint triggers... Ummm excuse me, but WHAT IN THE ACTUAL CUSS WORD. They know she's having seizures. They have been documented in the Emergency Room and in a Doctor’s office, but apparently that’s not good enough.

“What would pinpointing the triggers do exactly?”

Well, we already know what most of her triggers are anyways, also they are already documented, and these are not things she can avoid in life.

This was the most wasteful nonsense ever, that kept my child in a hospital bed for almost a week. Thank goodness she has dual insurance. Medical costs bankrupt families every day.

So do we have our approval yet? NOPE! Her case is still "being reviewed". Now let me tell you what happens if we get an approval after all of this, WHY we would have jumped through all these hoops...

We pay $200 to the state of Utah, and they give us a permit to possess medical cannabis. They don't tell us what kind, how to dose, where to buy it.. NOTHING. All these hoops so I can legally have a plant oil in my home for my epileptic child... Then I go to another state, and work with the dispensary there to find the right dose for her. For those that may not know this, dispensaries have people that are HIGHLY trained in this. Peoples vision of the long haired stoned hippy handing me a bag a weed or a brownie, is NOT the reality of this.


Until then she lives with seizures, and we carry a nasal spray full of a benzo medication as a rescue medication to stop seizures after 5 minutes...


Please educate yourself on medical cannabis and who patients are if you do not know.


Much Love,

Kelly